I was hoping that the next time I sat to tell you of what is new in Calebs life that it would be how great he was doing and how much he had improved.....and in some ways I can. The lastest xray shows that his bone is much stronger and the new growth has consolidated very well. He is back at school and managing to walk without an aid, 99% of the time.
However the last two weeks have thrown us a surprise as we have found ourselves battling a spontaneous staph infection. Without going into the details, this time 2 weeks ago we noticed a small sore open up on one of his scars and by the beginning of this week Caleb had developed approx 15 staph sores over his legs, arms and face. This in itself was enough, however after a few consultations with our ortho surgeon, we became increasingly concerned about a particular sore that indicated infection in the pin tract in the tibia. Caleb was started immediately on antibiotics, which unfortunately saw us in the frustrating progression of discovering he was allergic to 2 and had developed resistance to another. This all came to a head when we were admitted back to hospital on Wednesday afternoon. I will spare you the details and skip to the part where Caleb was diagnosed with a chronic auto immune disorder which explains the reaction his body has been showing to the medications and other environmental influences. We excaped surgery to debride the bone which was the road we were headed down when initially admitted and sent home with a strict AB regime and to monitor him closely.
As I sit here, he sits on the couch not looking much better, but showing small steps in the right direction. One of the big blessings is that Caleb has not been unwell in this process. As much as he is having intrusive symptoms, he is physically well and active.
We are back to the surgeon tomorrow to assess the progress and we are believing for an improvement that they are happy with.
It has been a shock to us this week to be back in this place, but we once again have felt such a tangible wave of love and strength from our Father and his family!! I have had my moments where I have felt the weight of this new discovery and the surpirse return to intervention, but then I have also drawn so much from the things that we have been taught through this entire season.
We have declared His goodness, faithfulness and grace over us, even when we have been disappointed and confused.
We have spoken out His word as our truth when all else seemed more real in that moment.
We have once again chosen to trust and surrender our thoughts and plans to His wisdom and sovereignty.
We have drawn close to the heart of our Father so that the confusion and pain has not clouded our perspective of this season.
We have declared his praise in our moments of brokeness.
We have clung to truth over the specialist opinion.
We have celebrated the simplicity of togetherness as a pure joy.
We have chosen to rise up,
We have chosen to not be defined or deterred
We have been carried by the arms that are so much stronger than our human strength could ever be.
We have been grateful for the community of prayers that has wafted over us.
We have been blessed, strengthen, carried, and HELD!!
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